My son was diagnosed with gaustaut syndrome this year and i was told he can not be helped. I want to talk to other moms with children with gaustaut syndrome and also anyone who has help on how to start organization for funding .Thanks and good luck with your loved ones with epilepsy.

I received an email today saying I should not feel guilty for lack of teaching specific skills to my son with autism.  Why did they want me to know this? So I would buy their products of course!

Unfortunately for them I will not buy the product, and I won't buy into the manipulation of my emotions either.  This article is to empower you to do the same.

Reality check: Yes, I feel guilty.  I'll admit it. 

Advocacy resources are widely available, but finding information that applies to your specific situation can be challenging.  In the forum there’s a discussion about WrightsLaw, as it's an invaluable resource for parent advocates, especially those learning the fundamentals.

Here are a few other advocacy resources that may help (they have helped me)...

Epilepsy experts and paediatric neurologists from around the world believe the ketogenic diet should be used more regularly as a treatment plan instead of a last resort. 

Results of a new survey by the USA’s leading epilepsy groups have been unveiled, showing a need to challenge patients to take charge of their health and treatment options.  Less than half of patients with active epilepsy felt informed by their doctors about the different treatments available with few being referred to specialised epilepsy centres or experts.

Many parents face a challenge when it comes to finding the best educational placement for their child.

What do you do when a special education setting is too much support, but a general education setting does not provide enough?

My 14 year old with Aspergers does well in a general education setting with support.  He certainly struggles, but since socialization skills and confidence are now in place, he holds his own.

Speaking at the 2008 International Symposium on Dietary Therapy for Epilepsy and Other Neurological Disorders, British Mum Emma Williams tells of her fight to get son Matthew on the ketogenic diet.  In an address that brought tears to the eyes of not only this brave Mum but many in the audience, she speaks of her rage at doctors refusal to take the ketogenic diet seriously and the subsequent brain damage her little boy suffered due to constant seizures. 

There are many valuable resources a parent can call on when their child receives a diagnosis of epilepsy. Doctors, Health Care professionals in all shapes and sizes, Teachers and other parents to name just a few.

But this clip from the 1998 film ‘First Do No Harm.’ Highlights an often-overlooked source of information. Meryl Streep who plays the mother of Robbie goes to visit an adult with epilepsy to try and find out about his experiences.

Vaccinations are a controversial topic, so many people are watching the latest court case involving a child injured from vaccines.

This case involves a child born in 1974 and the vaccination being discussed is the DTP, which has been altered since that time. 

As expected, those arguing vaccines are safe, assert the child had a pre-existing condition that predisposed the child to having an adverse affect and subsequently autism, in addition to other neurological injuries.

My son with autism used to wander.  Actually, he used to escape first and then wander! In one particular situation I had to call the police to help me find him and, upon their arrival, it was clear that they did not understand the implications of autism on search and rescue. After my son was found (safe & sound), I realized I could have been better prepared myself.