Blogs

A Whole New Meaning To Pro-active

Barbara Pugh's picture

April 28th to July 16th, Glenn Fenster undertook an epic bike ride from Denver to Miami to raise funds for epilepsy research and charities. He also aimed to raise awareness of epilepsy along the way. What you may ask would drive anyone to do this? The answer is very simple. His passion is driven by the fact that like so many parents, his son Nyle was diagnosed with epilepsy.

Is Your Money Used to Treat Your Child?

Amber Kane's picture

Who should pay for the treatment of Autism? Who decides where the money is spent? Schools, parents or insurance companies?

Well, I'm not sure. In essence, in the US, taxpayer’s money goes to the Federal and State governments and, in turn, is used to fund programs that provide services to our children.

Or it is supposed to anyway.

Treating Autism with an Open Mind

Amber Kane's picture
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While working with a parent yesterday, I became quite frustrated (internally) upon realizing this person was absolutely against any dietary or biomedical interventions.

What frustrated me was her unwillingness to educate herself about these treatments; not the fact that she would choose to not implement them, as treatment of autism is a very personal decision.

Treatment Options for Epilepsy

Arlene Martell's picture

Once a diagnosis of epilepsy is made, the next step is to decide how to treat it. These days, there are several treatment options for epilepsy.

In a few cases, avoiding a known trigger for seizures may prevent them. However, you may not be able to avoid all seizure triggers—and avoiding them may not completely eliminate seizures. Many factors that can trigger seizures include:

Why Sharing Your Two Cents is Priceless

Amber Kane's picture

Finding people that understand is literally priceless. The only thing I love more than contributing to this site is receiving and reading comments from fellow members of the epilepsyMoms community, so thanks for your comments and please keep them coming!

After I read comments or emails from other parents, I am usually reminded of a few things...

I'm reminded that I'm not the only one in the world doing 'this' - as in parenting a child, in my case children, with special and exceptional needs.

Team Sports for Children with Disabilities

Amber Kane's picture

I wish there were more opportunities for children with autism to participate in team sports or similar activities.

In the summer my two children with developmental disabilities play Challenger Baseball and, during these games on Sunday nights, I sit in the stands and cheer my children on like so many other parents have the opportunity to do.

Home Schooling is Going Great: How's Your School Year?

Amber Kane's picture

It's the beginning of our third week as home-schoolers and I'm tired. My son, Ian, is too. Everyday during our home-school program, my son and I exercise or are physically active for at least two hours (I have found muscles in my thighs I never knew were there).

UK Charity Epilepsy Action Provides Valuable New Service for Helpline Users

Catherine Jeans's picture

Advice and information about epilepsy is now available to people in the UK at the touch of a button. The charity, Epilepsy Action, is providing a new text service for helpline users, allowing them to send their questions by SMS text message at any time of the day, 7 days a week.

The Unseen Effects Of Doctor's Censorship (Video)

Barbara Pugh's picture

Doctor’s have a huge amount of power over the degree of information they choose to give parents. Some may argue that they can only give what is appropriate and to overload a parent with information causes more harm than good.

Going Gluten Free: Step 1

Amber Kane's picture

The idea of beginning a gluten free diet can be overwhelming. I must admit my oldest child became gluten and casein free after being diagnosed with several food allergies, not because I chose to use this diet as a treatment for autism.

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