Blogs

Cause Of Children’s Seizures Pinpointed By Hypnosis

Catherine Jeans's picture

Physicians at Lucile Packard Children’s Hospital in Stanford have discovered they can pinpoint the cause of children’s seizures by using hypnosis. Finding out the reason why a child is seizing is essential for diagnosis and treatment and this groundbreaking discovery could help provide a more accurate and much faster diagnosis.

Strategies Used Against Parents and Advocates- Part III: Isolation

Amber Kane's picture

Feeling isolated or alone can be devastating to your advocacy efforts. Intentional or not, many professionals utilize the strategy of 'isolation' to buy themselves time to ensure they act in the best interest of the entity they represent...Not the best interest of your child.

Essential Information For Nannies And Babysitters

Catherine Jeans's picture

Unfortunately for parents some nannies and babysitters can be very nervous about looking after children who suffer from seizures and epilepsy. This can seriously limit the choice of help available for busy parents and make it difficult for them to find someone to help with childcare. Yet once you’ve found the right person for the job, it’s important to give nannies and babysitters essential information for dealing with your child’s seizures. The Epilepsy Foundation has come up with a number of guidelines to help you inform any potential child carer of everything they need to kno

Strategies Used Against Parents and Advocates- Part II: Refusal & Rigidity

Amber Kane's picture

In my last posting I discussed the tactic of role-reversal being used to deter parents and advocates. Today I want to chat about two other strategies you may encounter: Refusal and Rigidity.

Here are some common examples of Refusal and Rigidity at work:

Professional (from school, agency, organization, etc.)says to parent or advocate...

Strategies Used Against Parents and Advocates- Part I: Role Reversal

Amber Kane's picture

Since so many entities use similar strategies and tactics against parent advocates, I've decided to try and point them out to you, in the same way they were exemplified to me. Today's lesson: Role Reversal

I must point out school districts are the easiest example of an entity that employs these repressive, but effective, techniques to deter parents and advocates. However, as your child ages out of school or into the community, you will find organizations, businesses, councils and other venues also use these tactics.

Have you ever been asked...

Summer Camp For Kids With Epilepsy: Building Confidence And Fostering Independence

Catherine Jeans's picture

Kids love summer! It’s the best time of year to kick of their shoes, hang out in shorts and have fun in the sunshine with their mates… and summer camp is no exception, offering the perfect place for them to enjoy the good weather, as they make new friends, try new sports, get involved in a whole host of exciting activities and experience some time away from home.

Autism: A Family Disability

Amber Kane's picture

So often we focus all our attention and energy on supporting our child diagnosed with autism - and rightfully so! However, it's so important to realize and understand autism affects the entire family.

Every person will have their own reaction, emotions and challenges related to a child being diagnosed with autism. It's no secret that families need support. I think what often goes overlooked is that each person will need individual support depending upon their role in your child's life.

Sports Stars Come Together To Educate The Public About Epilepsy (Video)

Catherine Jeans's picture

Most of us know that one of the best ways to dispel the myths and stereotypes about epilepsy is to educate and inform the general public, both adults and children. Now sports stars as well as a world famous DJ have come together to present an informative and entertaining short video which offers information as well as essential first aid advice for dealing with seizures.

The Greatest Teaching Tool Ever: Interest

Amber Kane's picture

While I've always known it's important to use a child's interest as a foundation for teaching, I was amazed this morning as I watched this theory being put into practice.

Today was the first day of home-schooling my 12 year old son with autism. I was secretly worried that he would protest and refuse any activity I presented. Boy was I wrong!

Epilepsy Medications and Their Side Effects

Arlene Martell's picture

Medications and side effects always come together. The most important goal is to control the seizures. If medication is prescribed, the goal must be to control the seizures with the fewest side effects possible! One must weigh the benefits of controlling seizures with the risks posed by side effects of anti-seizure medications. This is largely depend on how many seizures the child is having.

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