Epilepsy And How It Affects Siblings: Advice From The Experts

August 29, 2008 By

When a family member suffers from a long-term illness it can have a tremendous impact on the rest of the household. In the case of children it can be particularly difficult for them to cope seeing their loved ones in pain or unwell, with feelings of being left on the

Filed Under: Epilepsy, Epilepsy News, School Issues & Learning

Gaustaut Syndrome - Help Me With Organization to Fund Research

August 28, 2008 By

My son was diagnosed with Gaustaut Syndrome this year andI was told he can not be helped. I want to talk to other moms with children with gaustaut syndrome and also anyone who has help on how to start organization for funding. Thanks and good luck with your loved ones

Filed Under: Diagnosis / Seizure Types, Epilepsy, Epilepsy News, Personal Story

Marketing by Manipulating Parent's Emotions

August 28, 2008 By

I received an email today saying I should not feel guilty for lack of teaching specific skills to my son with autism. Why did they want me to know this? So I wouldbuy their products of course! Unfortunately for them I will not buy the product, and I won’t buy

Filed Under: Autism, General Discussions

Dr. Peterson Argues for the Ketogenic Diet

August 27, 2008 By

One of the major issues explored in the 1998 film ‘First Do No Harm.’ Are certain members of the medical establishment’s blatant refusal to work with parents for the good of the child. Instead they ride roughshod over the parent’s wishes, give people minimal information and dictate what must be

Filed Under: Epilepsy, Ketogenic Diet, Surgery & VNS, Video

Special Education Advocacy Resources

August 25, 2008 By

Advocacy resources are widely available, but finding information that applies to your specific situation can be challenging. In the forum there’s a discussion about WrightsLaw, as it’s an invaluable resource for parent advocates, especially those learning the fundamentals. Here are a few other advocacy resources that may help (they have

Filed Under: Autism, School Issues & Learning

Leading Epilepsy Groups Unveil New Survey Results Challenging Patients To Take Charge Of Their Health

August 24, 2008 By

Results of a new survey by the USA’s leading epilepsy groups have been unveiled, showing a need to challenge patients to take charge of their health and treatment options. Less than half of patients with active epilepsy felt informed by their doctors about the different treatments available with few being

Filed Under: Epilepsy, Epilepsy News, General Discussions

In Between Special Education and General Education

August 23, 2008 By

Many parents face a challenge when it comes to finding the best educational placement for their child. What do you do when a special education setting is too much support, but a general education setting does not provide enough? My 14 year old with Aspergers does well in a general

Filed Under: Autism, School Issues & Learning

An Adult With Epilepsy Can Be A Valuble Resource For Parents

August 21, 2008 By

There are many valuable resources a parent can call on when their child receives a diagnosis of epilepsy. Doctors, Health Care professionals in all shapes and sizes, Teachers and other parents to name just a few. But this clip from the 1998 film ‘First Do No Harm.’ Highlights an often-overlooked

Filed Under: Epilepsy, General Discussions, Video

Vaccines in Court Again

August 21, 2008 By

Vaccinations are a controversial topic, so many people are watching the latest court case involving a child injured from vaccines. This case involves a child born in 1974 and the vaccination being discussed is the DTP, which has been altered since that time. As expected, those arguing vaccines are safe,

Filed Under: Autism, Autism News, General Discussions

How to Prepare for an Autism Emergency

August 20, 2008 By

My son with autism used to wander. Actually, he used to escape first and then wander! In one particular situation I had to call the police to help me find him and, upon their arrival, it was clear that they did not understand the implications of autism on search and

Filed Under: Autism
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