Next Week Anna is Going for Six and a Half Hours of Testing

May 30, 2008 By

Next week we have two appointments in Atlanta. I’m ever so grateful that we’re not too far away, only about 90 minutes away, from the best doctors for children’s neurology. Monday, we see her neurologist to get the results of the EEG. Then Thursday we go back up there, this

Filed Under: Epilepsy, Journal Tagged With: ,

Help - Son Diagnosed with Epilepsy about 4-Years Ago!

May 30, 2008 By

I am really not sure what to do right now. My son was diagnosed with epilepsy about 4-years ago, and we have yet to find a combination of medication to work for him. He is not having seizures everyday but it is getting to be more frequent. I know that

Filed Under: Epilepsy, Journal

About me….KarenCee and My 9 Year Old Daughter Anna

May 26, 2008 By

I just joined today. I’m on a Facebook group for parents of children with epilepsy and someone recommended this site. I’m all for finding as much support as I can…there’s NONE here where I live. My daughter is 9 and we’ve been dealing with this for just over a year.

Filed Under: Epilepsy, Personal Story

Does the fear ever go away?

May 26, 2008 By

Hi everyone. My name is julie. I have an 11 year old daughter. She had her first seizure when she was 5. It was what they call a grand mal seizure. Her hand and legs were drawn and her eyes were rolled back in her head. I had never seen

Filed Under: Epilepsy, Personal Story

Staying Hopeful for Austin

May 25, 2008 By

I am a mother of an almost two year old boy, Austin. He has had seizures for a full year now. My husband, son and I live in Port Moody, B.C. Austin started with simple partial seizures but once he went on Tegretol he developed myoclonic seizures which he has

Filed Under: Epilepsy, Ketogenic Diet, Personal Story

The most AMAZING Video I Have Ever Seen: Beautiful Minds: Stephen Wiltshire

May 24, 2008 By

Stephen Wiltshire from London is a star among savants. Stephen is autistic. He did not speak his first words or “pencil” and “paper” until he was 5 years old. Yet, when he was age 11 he drew a perfect aerial view of London after only one helicopter ride. For this

Filed Under: General Discussions, Journal

Angleman Syndrome: Mom Laurie and Little Megan's Story

May 21, 2008 By

Well Megan was born on June 1, 2006.She was a happy and heathly baby. She was an easy baby and laughed all the time, 2am in the morning too.At 4 to 5 months Megan was rolling over, at 6 months she wasn’t rolling or sitting up, at 8 months she

Filed Under: Epilepsy, Personal Story

The Ketogenic Diet – Top 10 Supplies You Can NOT Live Without!

May 20, 2008 By

I can definitely talk from experience on this topic and am happy to share all the little tips and tricks I learned to make my experience with the ketogenic diet much more enjoyable! Especially for parents first starting the diet, there is definately a learning curve and I sure appreciated

Filed Under: Epilepsy, Ketogenic Diet, Special Diets & Nutrition

Young Child Just Had Two Brain Surgeries for Epilepsy

May 15, 2008 By

Morgan Perry, the Daughter of Karen Perry and her husband Shawn, a US Air Pilot, has recently endured two risky and highly invasive brain surgeries. The first procedure was a Craniotomy on April 8th where grids were placed directly on her brain and then her brain studied because of a

Filed Under: Epilepsy, Surgery & VNS

People Do Not Understand this Disease Epilepsy

May 15, 2008 By

This story added with permission by Sally Hello, I must tell you that it has not been an easy road caring for Brian. Sometimes I do not talk about it because it is just too painful. I am sure you know about that.I have watched Brian suffer numerous broken bones,

Filed Under: Epilepsy
« Older Posts