About me….KarenCee and My 9 Year Old Daughter Anna

I just joined today. I’m on a Facebook group for parents of children with epilepsy and someone recommended this site. I’m all for finding as much support as I can…there’s NONE here where I live. My daughter is 9 and we’ve been dealing with this for just over a year.

Does the fear ever go away?

Hi everyone. My name is julie. I have an 11 year old daughter. She had her first seizure when she was 5. It was what they call a grand mal seizure. Her hand and legs were drawn and her eyes were rolled back in her head. I had never seen

Staying Hopeful for Austin

I am a mother of an almost two year old boy, Austin. He has had seizures for a full year now. My husband, son and I live in Port Moody, B.C. Austin started with simple partial seizures but once he went on Tegretol he developed myoclonic seizures which he has

Angleman Syndrome: Mom Laurie and Little Megan's Story

Well Megan was born on June 1, 2006.She was a happy and heathly baby. She was an easy baby and laughed all the time, 2am in the morning too.At 4 to 5 months Megan was rolling over, at 6 months she wasn’t rolling or sitting up, at 8 months she

My First Child & She Has Had Epilepsy Since 12 Weeks Old

Hi Everyone, I’m Natalie from Australia, I live with my partner & our 2 daughters in country NSW. 5 hours away from the Children’s Hospitalwear our peadiatricianpractice’s from. My eldest daughter Taylor is now 4.5 years old & has been diagnosed with Epilespy since she was 12 weeks old. I