HALEY HAD ANOTHER SEIZURE TUESDAY NIGHT. HERE IS WHAT HAPPENED (SORRYA BOUT THE CAPS, THE KEYBOARD IS STUCK!):
AT 4PM I NOTICED THAT HALEY WAS ASLEEP IN THE CHAIR IN THE LIVING ROOM AND ALEXA WAS ASLEEP ON THE COUCH. AT 415 I WOKE HER UP FOR DINNER. HALEY SAID SHE HAD A HEADACHE AND I GAVE HER 200MG OF ADVIL. WHILE AT DINNER, I NOTICED HALEY’S HEAD WAS BOBBING AND I COULD SEE HER BODY PHYSICALLY JERKING. I CONTINUED TO ASK HALEY IF SHE WAS FEELING ALRIGHT. AFTER DINNER, I ACCOMPANIED HALEY TO THE LIVING ROOM AND SHE SAT IN THE RECLINER. AT 4:32 SHE SAID HER HEAD FEELS WEIRD LIKE SHE IS FALLING". NO SOONER DID SHE SAY THAT AND HALEY’S BREATHING BECAME EXTREMELY RAPID AND IRREGULAR, SHE GRASPED HER CHEST WITH HER RIGHT HAND AND BEGAN YELLING OUT. I WAS RUBBING HALEY’S HEAD TALKING SOFTLY TO HER TO GET HER TO CALM DOWN. HALEY’S BODY WENT SOMEWHAT RIGID AND SHE COULD NOT FOCUS OR HEAR ME. SHE CONTINUED TO YELL OUT WHILE GRASPING HER CHEST. I CONTINUED TO SPEAK CALMLY TO HER AND RUB HER FACE. WITHIN A FEW SECONDS, HALEY BEGAN TO COME AROUND AND IMMEDIATELY SAID HER HEAD WAS HURTING REALLY BAD.
HALEY’S ENTIRE BODY BEGAN SHAKING UNCONTROLLABLY. I WRAPPED HER IN A BLANKET AND GOT A COLD PACK FOR HER HEAD. WITHIN A FEW MINUTES THE SHAKING STOPPED AND HALEY APPEARED TO BE CALMING DOWN.
HALEY ASKED WHAT HAPPENED. SHE SAID SHE COULD FEEL HER EYES GOING UP AND COULD FEEL HERSELF GETTING READY TO HAVE A SEIZURE AND HER HEART TOOK OFF RACING. I TOLD HALEY THAT THE REASON SHE FELT SHE COULD NOT BREATH AND THAT HER HEART RACED WAS BECAUSE SHE PANICKED. I TOLD HER THAT BECAUSE SHE FELT THE SEIZURE COMING ON, SHE FOUGHT IT AND IT SCARED HER AND SHE HAD A PANIC ATTACK.
OBVIOUSLY HER MEDICAITON IS NOT WORKING. HER NEUROLOGIST HAS SCHEDULED A VIDEO BRAIN STUDY IN FEBRUARY, BUT WHY SHOULD SHE HAVE TO SUFFER UNTIL THEN?
ANY ADVICE OUT THERE?? I COULD REALLY USE SOME!
