It's very sad to hear that John Travolta's son--Jett, died on Friday after having a seizure and hitting his head in the bathroom.

I know he had Kawasaki Disease, which he developed around the age of two.

I have had trouble finding any information on the Internet about whether or not they tried any dietary interventions on hims--like the Ketogenic Diet.

All three of my boys have been diagnosed with undefined Mitochondrial Disease.   Casey and Evan have Autistic Spectrum Disorders.  Casey the oldest and Max the youngest have recently been diagnosed by their Neurologist with complex partial epilepsy.  Casey's EEG's look different each time but always show irregular brain activity.  Both take Tryleptal which seems to help them.  Casey had a sever allergic reaction to Lymictal.

Hi, just wanted to let you know that the Ketogenic Diet is finally working!

My daughter Milla started the diet in August on the 1stand within 10 days she was seizure free. Then she started getting them again :(  They like to decide after 3 months if you should continue the diet or not. Since Milla was having so many seizures the nurse on the phone was leaning towards the fact that the diet really wasn't doing anything. The strange thing is her diet was never changed or adjusted.

Typically if an infant were to develop seizures, they are most likely to occur between 4 to 8 months of age. Spasms that result from the seizures can range from mild to severe. As a form of treatment, researchers are not suggesting drugs be used as the first method of treatment for infant epilepsy, but rather dietary intervention. Researchers have found that changing a baby's diet can effectively eliminate spasms.

Hi Everyone,

Here is the story of my beautiful angel Ashley.  Ashley starting having seizures when she was 2 years and 3 months old.  That now 19 months ago and so started a life of hell.  Since them Ashley has been on five different medication and the past 6 months she has been on the Ketogenic diet. 

Watching a young child struggle with a debilitating illness is a parent’s worst nightmare. And when there is little hope for a positive outcome, it can be devastating, to say the least. But for Arlene Martell, whose son was diagnosed with Epilepsy and Autism, the real battle was not with the disease; it was with a system that continually failed her and her sick son, Adam.

Thank you Arlene for giving us the opportunity to tell our stories.  Mine might me quite lengthy as we have been on this roller-coaster for over 2 years. 

Thank you Arlene for giving us the opportunity to tell our stories.  Mine might me quite lengthy as we have been on this roller-coaster for over 2 years. 

Hollywood star Meryl Streep was so moved by the Abrahams’ story that she decided to become involved in the fight to inform parents about the ketogenic diet.  She narrates and introduces the information video made by the Charlie Foundation which is available to parents across the world. 

Streep was close friends with movie director Jim Abrahams, who asked for her help to increase awareness of the ketogenic diet as a treatment for childhood epilepsy.  His son Charlie was successfully prescribed the diet and after a few days his seizures ceased completely.

Addressing the International Symposium on Dietary Therapy for Epilepsy and Other Neurological Disorders, mother and doctor Deborah Snyder reveals her first-hand experience of the ketogenic diet and its success in curing her son’s epilepsy.  She implores health professionals to recognise the efficacy of the diet in stopping seizures and aims to dispel the myth that the diet is too difficult or not worth the effort.