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Does the fear ever go away?

Hi everyone.

My name is julie.

I have an 11 year old daughter. She had her first seizure when she was 5. It was what they call a grand mal seizure. Her hand and legs were drawn and her eyes were rolled back in her head. I had never seen a seizure and this being my first and only child, I panicked, I thought my baby was dying!!!

When we got her to the ER, she had a small fever (100.5) so they said it probally was a febrile seizure and that she would probally never have another one. They did a cat scan and found nothing.

Staying Hopeful for Austin

contactkimd's picture

Austin DupreyI am a mother of an almost two year old boy, Austin. He has had seizures for a full year now. My husband, son and I live in Port Moody, B.C. Austin started with simple partial seizures but once he went on Tegretol he developed myoclonic seizures which he has between 100-200 a day. We are on his fifth medication now but are remaining hopeful because we are being referred to a neurologist who leads the ketogenic diet at Children's Hospital.

The most AMAZING Video I Have Ever Seen: Beautiful Minds: Stephen Wiltshire

Arlene Martell's picture

Stephen Wiltshire from London is a star among savants. Stephen is autistic. He did not speak his first words or "pencil" and "paper" until he was 5 years old. Yet, when he was age 11 he drew a perfect aerial view of London after only one helicopter ride.

For this film they tested the "Living camera" in Rome. Stephen had never seen an aerial view of Rome before and went on a 45 minute helicopter ride scanning the buildings and streets below.

Angleman Syndrome: Mom Laurie and Little Megan's Story

Well Megan was born on June 1, 2006. She was a happy and heathly baby. She was an easy baby and laughed all the time, 2am in the morning too. At 4 to 5 months Megan was rolling over, at 6 months she wasn't rolling or sitting up, at 8 months she was hositpalized for RSV with peumonia, this is when life took a turn for the worse.

Megan still wasn't sitting or rolling and 9 months Megan started having over 100 of seziues day. We had one neurologist that was doing much for her seziures and another one that said they weren't sezures.

The Ketogenic Diet – Top 10 Supplies You Can NOT Live Without!

Arlene Martell's picture

I can definitely talk from experience on this topic and am happy to share all the little tips and tricks I learned to make my experience with the ketogenic diet much more enjoyable! Especially for parents first starting the diet, there is definately a learning curve and I sure appreciated any advice I could get. There are lots of little things that can make the adjustment easier!

Young Child Just Had Two Brain Surgeries for Epilepsy

Arlene Martell's picture

Morgan Perry, the Daughter of Karen Perry and her husband Shawn, a US Air Pilot, has recently endured two risky and highly invasive brain surgeries. The first procedure was a Craniotomy on April 8th where grids were placed directly on her brain and then her brain studied because of a lifetime of seizures. On April 10th, she had the second procedure, a partial Occipital Lobe- ectomy at St. Joseph’s hospital in Phoenix, Arizona at Barrow’s Neurological Institute.

People Do Not Understand this Disease Epilepsy

Arlene Martell's picture

This story added with permission by Sally

Hello,

I must tell you that it has not been an easy road caring for Brian. Sometimes I do not talk about it because it is just too painful. I am sure you know about that. I have watched Brian suffer numerous broken bones, unkindness from ignorant people (especially those in the capacity to help him) and the very limited social life he has lead because he is afraid he may go out and have a seizure.

A Remarkable Journey of a Courageous Mother and Her Child

Jennifer Green's picture

Remember- Mother's Outrank Everyone!

If you have a child with epilepsy and the drugs simply are not working, you are likely searching for answers. However, answers can be difficult to come by and that is why Arlene Martell wrote a book for mother’s who are dealing with this specific challenge. Her E-book, Getting Adam Back, is an uplifting story that instills hope through her rendition about hers and her son's own personal triumph over epilepsy and autism.

Understanding the Benefits of Neurotherapy

Arlene Martell's picture

A Natural and Holistic Approach for the Treatment of Seizure Disorders

While many are not familiar with the concept of neurotherapy, the process has shown tremendous promise for many afflicted with a variety of diseases, including Epilepsy. Neurotherapy is a process that works by stimulating portions of the brain to encourage repair and re-development.

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