This story added with permission by Sally
Hello,
I must tell you that it has not been an easy road caring for Brian. Sometimes I do not talk about it because it is just too painful. I am sure you know about that.I have watched Brian suffer numerous broken bones, unkindness from ignorant people (especially those in the capacity to help him) and the very limited social life he has lead because he is afraid he may go out and have a seizure.
People do not understand this disease.I have started reading the information we
got from you, and I feel the same way about childhood inoculations. There is NO SIGN of
epilepsy in either mine, or Brian’s fathers families. Brian didn’t start having seizures until
he was 7 mo. old, right about the time he received his DPT inoculation. I actually saw an
article in the paper regarding the concerns about giving these to children and their risks
involved. The article stated that the risks of NOT giving them outweighed the risk of doing so. (I wonder if they would feel the same if it were their child). How do you prove such a
thing 37 years later??????
In my mother’s heart, I am convinced this is what happened to Brian. All he wants is to lead a normal life, and be able to do things other people take for granted.A home, a family of his own, a job…. simple things like that.He deserves it.
I hope in my lifetime, I can see it happen for him. It is heartbreaking when he asks “Why am I even here?”It is only by God’s grace that I have the strength to endure it some days.
Best regards,
Sally O’Toole
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About Arlene Martell
