Doctor Appointment

The neuro appointment yesterday was not to bad. We talked about all the aspects of her seizure the night before. Then we got down to the fact she has now been on a total of three medicines, none of them fully controlling the seizures. That with the fact the seizures always last an hour or more before finally stopping. I was then told we are down to just three options now because the chances of any medicine stopping them was very slim. So now our options we have ranging from the most effective to least. 1. surgery if they can find exactly where it is starting from and taking the part out would not affect anything, they have an idea already where but need to make sure. 2. Keto diet, this would be fine with me and they would hope to be able to get her off her meds as well with both these options. 3. VNS- may work may not but she would likely have to stay on meds which are affecting her memory and such. They are having us come in for an EEG and MRI in the next two months. Plus they are going to talk and figure out which of these options will be best. They may also want to do a 24-48 hour EEG in hospital with no meds because of the twitching at night. At this point, after this last seizure. I don’t care what they have to do to figure out how to help her and stop these seizures. As we have said all along it is not how often she has them since we can go a few months in between, it is how long they last. Them lasting so long is not good on her brain or her body. I feel so helpless and bad that I can’t do anything to help her.

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