Well Megan was born on June 1, 2006.She was a happy and heathly baby. She was an easy baby and laughed all the time, 2am in the morning too.At 4 to 5 months Megan was rolling over, at 6 months she wasn’t rolling or sitting up, at 8 months she was hositpalized for RSV with peumonia, this is when life took a turn for the worse.
Megan still wasn’t sitting or rolling and 9 months Megan started having over 100 of seziues day.We had one neurologist that was doing much for her seziures and another one that said they weren’t sezures.
My baby girl could to nothing at a year old. At11 months she was diagnosed with Angleman Syndrome.
It wasn’t until December of 2007, that we found Megan’s current neuologist. She is wonderful she saved my daughters life. When she first saw Megan, Megan was in non-consulsive status. She was hospital and did many EEGs to comfirm that they were in fact seizures, it was the video that confirmed it with the doctor.At this point Megan’s life was in danger and was put on the ketogenic diet after so many meds failed to work.Along with the diet and meds Megan seziures are under control some what. Megan has a Gtube now since drinking from a bottle caused a lot of her seizures. But the diet is cause her relfux to become worse.Megan’s seziures are increasing a little too and a new seizuresare emerging.So I am at a loss at what to do with her.Megan will be 2 on June 1 and is still not sitting up.
That’s are life in a nutshell.
Laurie
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